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2025 Spring Newsletter
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AL Amyloidosis
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Amyloidosis Awareness Items
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Webinar: Updates in AL Amyloidosis
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Hereditary Amyloidosis
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The Amyloidosis Channel
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Patient Education Activity
Read More HereWhat is Amyloidosis?
AMYLOIDOSIS is a term that represents several different types of diseases where an abnormal protein called amyloid is produced. These amyloid protein fibers can attach and deposit into organs, tissues, nerves, and other places in the body. When that happens, normal function of the area can be affected. As the amyloid protein increases, health problems and organ damage may occur. “OSIS” means increased, or an abnormal, supply of AMYLOID protein.
Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.
Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.
Featured Patient Story
Where will this ATTRwt amyloidosis journey take me?
Howard Covel
Where will this ATTRwt amyloidosis journey take me? I like to travel; however, this trip was not planned or wanted! I wonder a lot about the journey I am starting, so far it has been OK. In 2017 I had an angiogram that my cardiologist described as being a little weird and she said she would keep watching it. Yearly...
Read the Full StoryLatest Headlines
2025 Spring Newsletter
May 21, 2025
Be sure to catch up on the latest happenings in our fall newsletter here!
Calendar & Upcoming Events
Seattle Amyloidosis Support Group Meeting
SAVE THE DATE: PNW Support Group Gathering
Contact Sally Cox to RSVP at 206-819-3025
Webinar: Office Hours with Dr. Mazen Hanna
Webinar Session: Wednesday, August 6, 2025 at 6 PM (ET) Zoom Meeting
(These sessions will not be recorded due to patient involvement and HIPAA laws)
To Register HERE
Office Hours: Dr. Mazen Hanna Cardiologist from the Cleveland Clinic
Speaker: Dr. Mazen Hanna
Webinar: Education on PBMs and how they impact our prescriptions
Webinar Session: Wednesday, July 30, 2025 at 6 PM (ET) Zoom Meeting
(These sessions will not be recorded due to patient involvement and HIPAA laws)
To Register HERE
Cole’s Story and Education on PBM’s and how they impact our prescriptions
Speaker: Bill Schmidtknecht
Amyloidosis Videos
This section features a collection of informative videos that provide valuable insights into amyloidosis. Watch expert-led content on various aspects of the condition, from diagnosis to treatment, to deepen your understanding and stay informed.
